SMA Awareness Ribbon Christmas Ornaments

Madison helped to make Christmas ornaments using the SMA Awareness ribbon as her inspiration to help spread more awareness during the holiday season. These are just an example of how you can use the SMA Awareness ribbon in your every day life to help spread more awareness of Spinal Muscular Atrophy. Share your ideas and pictures with us anytime and we will post them here on the blog and on our facebook pages.

Shop for SMA Awareness Ribbon merchandise here or more online through our zazzle store!

AUGUST IS SMA AWARENESS MONTH!

Madison has a message and challenge to Kendall Schmidt, Heffron Drive: 

"Heffron Drive my disease SMA is almost exactly like ALS only it affects kids and is the #1 genetic killer of infants and toddlers. Emma L. and I have the worst form. We've lived longer than expected only because our parents decided to do things to help keep us alive. I challenge Heffron Drive and your families including Yuma to do the #SMAicebucketchallenge in 24 hours or donate $100 to www.miracleformadison.org here at i-give at OSU.

I can't pour ice water over my head or I would choke, get pneumonia and die ( I can't swallow and even a simple cold can kill me because all my muscles are weak due to SMA).
So instead I donated $100 to SMA Research at The Ohio State University- Burghes Lab.
The challenge is on!

Once you do this challenge everyone in the SMA community will buy your new album Happy Mistakes to thank you because SMA is a #happymistakes -..."they said that we'd never make it, but maybe we already did, we've been traveling a long road now, we've been giving all we have to give,...cause we got what we need and we're looking for a miracle, and we don't mind waiting, no we don't mind, looking for a miracle..."

Preorder Happy Mistakes album NOW by Heffron Drive on itunes !

#SMAawareness #SpinalMuscularAtrophy #ALSicebucketchallenge #SMAawarenessmonth #1killer 

 http://miracleformadison.blogspot.com/ 
www.miracleformadison.org