Children's Champions

THIS SUNDAY October 22, 2102, WE NEED YOUR HELP & SUPPORT! 

Would you help if you knew you could save lives? Here is your chance to bring a MIRACLE to LIFE! 

Madison's aunts, cousins and even second cousins are running in the Nationwide Children's Hospital Marathon and they need a BIG PUSH to get to the finish line! They've got inspiration from Madison and all the SMA kids but they need that extra pixie dust to help their efforts save these kids!

Praying we can reach our goal of $10,000! All money goes DIRECT to Dr. Kaspar who is waiting on FDA approval to bring his SMA Gene Replacement Therapy to these children! DONATE NOW: http://www.nationwidechildrens.org.kintera.org/faf/search/searchTeamPart.asp?ievent=1011247&lis=1&kntae1011247=E42D38520DFE4173A3080D1594C8C5E0&supId=0&team=5101628&cj=Y

JOIN THE TEAM! BE A CHAMPION! PLEASE SPREAD THE WORD!

                                     
                                             http://miracleformadison.blogspot.com/

New SMA Presentation

On Madison's 13th birthday we were blessed with another miracle. Dr. Mary Schroth who is an SMA expert from Madison, WI spoke at Nationwide Children's Hospital on the pulmonary management of SMA. Her entire presentation can be viewed here: Respiratory Care Options For Children With Neuromuscular Weakness Thank you Dr. Schroth for taking the time out of your busy schedule to do this. Thank you Dr. John Kissel, Dr. Richard Shell & FSMA for your support.

Care Options for Neuromuscular Weakness

Read about Respiratory Care Options For Children With Neuromuscular Weakness

New SMA Care Series Booklets

Families of Spinal Muscular Atrophy announces a new booklet in its ongoing series on SMA care. This new booklet is focused on the critical aspects of respiratory care for children with Spinal Muscular Atrophy. The booklet was authored by Mary Schroth, M.D., a member of the Families of SMA Medical Advisory Council, and a leading expert on respiratory care for SMA patients. Read more at FSMA or download a free pdf copy here.

Also available from FSMA is a new booklet on Caring Choices for Parents of Infants Newly Diagnosed with SMA Type I. Read more at FSMA or download a free pdf copy here.