Back in July we began a new feature called Friends in the Fight to spotlight other SMA children and their families in their fight with SMA and to help raise money for the gene therapy research at OSU and NCRI. Our inspiration and first featured friend Miss Karah Barry will turn 4 years old on March 27th. Karah has been through several hospitalizations and intubations this past year and keeps on showing how courageous and brave she is. She has an incredible amount of inner strength and passion for life! Happy 4th Birthday Karah! We wish you many many more birthdays and unbirthdays to come!
Birthdays are huge milestones for kids with SMA! Most children with SMA type 1 die by their second birthday! Karah along with Madison and another soon to be featured friend Nolan Shofner have asked in lieu of birthday gifts, for donations towards saving their life and the lives of their SMA friends. Please consider making an online tax deductible donation in honor or in memory of any SMA child on our secure site igive to OSU. We have the opportunity to save many lives here but even a miracle needs a little help. Thank you!
If you are an SMA family or SMA organization and would like to join us in raising funds to get this promising gene therapy to clinical trial in the next year, please contact us at miracleformadison1@mac.com to have your child or group featured.
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