Today is SMA WORLDWIDE candle lighting day. Please take some time this evening at 8PM wherever you are to light a candle or hold up your cell phone and remember all those angels lost to this horrible disease and honor those warriors who continue to fight it!
Believe in miracles!
New SMA research update published in Nature Magazine reports the continued progress with the AAV9 gene replacement therapy that is being done right here at Nationwide Children's Research Institute and OSU.
You can read the article here!
Dr. Brian Kaspar is getting closer towards that Miracle for Madison and ALL her SMA friends! Thanks to several SMA nonprofits the gene therapy is moving forward at an incredible pace but many children are still suffering and dying from this horrible disease. PLEASE help us spread the word. Another $500,000 is NEEDED to get this into human clinical trial. if all continues to go well it will happen in early 2012!
THANK YOU Families of Spinal Muscular Atrophy (FSMA), Spinal Muscular Atrophy - Fight SMA, Sophia's Cure Foundation and Gwendolyn Strong Foundation and ALL the SMA Families working so hard to push this into a reality for our kids!
YOU can be part of a MIRACLE right now!
Please direct ALL donations directly to:
Dr. Brian Kaspar SMA Research
mail :
c/o Miracle for Madison SMA Research
6166 Enke Ct.
