Thursday, April 28, 2011

OKI Walk-N-Roll fundraiser


The OKI Walk-N-Roll in Cincinnati is this coming Saturday, April 30th 8:30AM-12:00PM at Xavier University's Cintas Center. The speakers which include our very own SMA Neurologist Dr. John Kissel start at 9:30 am and the walk starts at 10 am. Join in the fun! Even if you can't attend please consider making a donation or buy some raffle tickets. If you have any questions, please contact Beth Lockwood at 513-753-8222 or bethml@fuse.net.
Make a donation, purchase raffle tickets and view raffle prizes including an IPAD with accessories online !
 
http://miracleformadison.blogspot.com/ 

                                        Photobucket

PhotobucketPhotobucketPhotobucket

Monday, April 18, 2011

Spinal Muscular Atrophy- A Timely Review



Please read this very informative article titled: Spinal Muscular Atrophy - A Timely Review written by our very own Dr. John Kissel and Dr. Stephen Kolb from The Ohio State University. This article details the history of SMA and where we are today up until the most recent published reports.

There has been remarkable progress made towards a cure in recent years. We are on the verge of making that a reality. With your continued help and support we believe there will be a Miracle For Madison & her friends very soon. However, we can't do it without you. We are looking for individuals, families, groups, organizations and corporations to join together to help us and many other families to raise $1 million in the next year to get the very promising Gene Replacement Therapy into human clinical trial within a year. We have the opportunity to eradicate SMA!

Please contact us at miracleformadison1@mac.com if you are willing to help.
 
http://miracleformadison.blogspot.com/ 

Photobucket

PhotobucketPhotobucketPhotobucket

Subscribe via email

Enter your email address:

Delivered by FeedBurner